Natural History Study For Rare And Ultrarare Neurological Diseases
Seeking people who have a diagnosis of a rare or ultrarare neurological disease.
Seeking people who have a diagnosis of a rare or ultrarare neurological disease.
Seeking infants aged 6-8 months who have an older sibling with autism for a study to determine if intensive early intervention before at 15 months improves communication and language skills at 24 months.
Seeking teens aged 15-18 years old who were enrolled in the ELGAN study of premature infants between April 2002 and August 2004 for a follow-up study of health and developmental progress.
Seeking boys and girls with Fragile X Syndrome who were born between 2003 and 2017 for a registry to better understand how to manage and treat Fragile X Syndrome.