Seeking boys and girls with Fragile X Syndrome who were born between 2003 and 2017 for a registry to better understand how to manage and treat Fragile X Syndrome.
Participants in this registry will have a clinical exam with cognitive testing that may take as long as 3 hours shortly after joining the registry and then again about 2 years later. They will share their medical information and they and their parent or guardian will answer questionnaires.
What we're hoping for
We are enrolling people born between 2003-2017 who have Fragile X Syndrome (FXS) into a registry to collect data that we hope will improve managing and treating FXS and associated disorders.
ClinicalTrials.gov Identifier: Not Available