Conquering Diseases

Study Of An Investigational Drug For Facioscapulohumeral Muscular Dystrophy

Description

Seeking people aged 18-75 with Facioscapulohumeral muscular dystrophy (FSHD) for a study of an investigational gene and cell therapy infusion.

Overview

Participants in this study will get a one-time infusion of the investigational gene and cell therapy during a several-day hospital stay. Following hospital discharge, participants will need to be within a 1-hour drive of the hospital for 2 weeks. There will be about 12 study visits in the first year. For a few months following the infusion participants will need to take prednisone.

What we're hoping for

We are studying if an investigational gene and cell therapy infusion is safe and if it helps adults with Facioscapulohumeral muscular dystrophy (FSHD) function better.

Additional Information

ClinicalTrials.gov Identifier: NCT06907875

 Principal Investigator

Lawrence  Hayward, MD, PhD

UMass Chan Medical School

 Study Contact

Catherine  Douthwright

508-856-1529

Catherine.Douthwright@umassmed.edu

 Location

UMass Chan University Campus

55 Lake Ave North 

Worcester,MA 01655

508-856-8989