Conquering Diseases

Study Of The Long-Term Safety Of Vamorolone In Patients With Duchenne Muscular Dystrophy

Description

Seeking boys aged 2 and older with Duchenne Muscular Dystrophy who have been prescribed Vamorolone (Agamree) for a study of the long-term safety of the drug.

Overview

Participants in this study will have 5 study visits over 5 years and will be asked to complete questionnaires every year.

What we're hoping for

We are studying the long-term safety of the drug Vamorolone (Agamree) prescribed for boys aged 2 and older with Duchenne Muscular Dystrophy.

Additional Information

ClinicalTrials.gov Identifier: Not Available

 Principal Investigator

Brenda  Wong, MD

UMass Memorial Health

 Study Contact

Sarah  Figueira

508-856-1604

sarah.figueira@umassmed.edu

 Location

UMass Chan University Campus

55 Lake Ave North 

Worcester,MA 01655

508-856-8989